Disability and Health State Utility Values: A Framework for Assessing Ableism and Equity
Dielle J. Lundberg, MPH
Published: August 2023
ISPOR Value & Outcomes Spotlight
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Short Link to This Page:
ableism-qalys-2023.diellelundberg.com
Article Information:
Summary Blurb for Dissemination:
This conceptual essay introduces a framework for identifying and addressing ableism within quality of life measurement. The framework holds relevance for quality-adjusted life years (QALYs), disability-adjusted life years (DALYs), and many other health metrics for disabled, neurodivergent, and mad populations.
Summary Video for Dissemination:
Link to captioned YouTube video (also embedded below): youtu.be/XZ9iwikvf3M
Author Positionality:
Link: diellelundberg.com/about
Suggested Citation:
Lundberg Dielle J. Disability and Health State Utility Values: A Framework for Assessing Ableism and Equity. Value & Outcomes Spotlight. July / August 2023: 32-35. Available from: ispor.org/publications/journals/value-outcomes-spotlight/vos-archives/issue/view/global-threats-from-climate-change/disability-and-health-state-utility-values-a-framework-for-assessing-ableism-and-equity
Full Link to This Page:
Selected Social Media Highlights & News Coverage:
X / Twitter Post by the Office of Dr. Umair A. Shah, Washington Secretary of Health: https://x.com/WaHealthSec/status/1711531747106787423?s=20
X / Twitter Post by the Department of Health Systems and Population Health at the University of Washington: https://x.com/hspop_uw/status/1719120036315508946?s=20
Instagram Post by the Department of Health Systems and Population Health at the University of Washington: https://www.instagram.com/p/Cx3q7wkv7ct/?utm_source=ig_web_copy_link&igshid=MzRlODBiNWFlZA==
X / Twitter Dissemination Thread by Dielle Lundberg: https://x.com/diellelundberg/status/1696869048334930091?s=20
Related & Recommended Resources:
National Council on Disability. Quality-adjusted life years and the devaluation of life with disability part of the bioethics and disability series national council on disability. Published 2019. Available from: https://ncd.gov/sites/default/files/NCD_Quality_Adjusted_Life_Report_508.pdf
National Council on Disability. Alternatives to QALY-Based Cost-Effectiveness Analysis for Determining the Value of Prescription Drugs and Other Health Interventions. Published 2022. Available from: https://ncd.gov/publications/2022/alternatives-qaly